Should a woman with cystic fibrosis have a baby?

With proper management, careful monitoring, and working closely with your care team and obstetric team, many women with cystic fibrosis can carry a child without significantly affecting their long-term health.

Should someone with cystic fibrosis have a baby?

Most women with CF are able to become pregnant and achieve a normal pregnancy. Your obstetrician should be able to help you understand your reproductive health to help you make the right family planning decisions.

Can someone with cystic fibrosis have children?

Thanks to advancements in cystic fibrosis care and research, more adults with CF are considering starting families. Although parenting is not for everyone, it is important to understand that having kids is a very real possibility for people with CF if it is something they wish to pursue.

Can a person with cystic fibrosis have a child with cystic fibrosis?

Cystic fibrosis is caused by a change (mutation) in the gene that makes cystic fibrosis transmembrane regulator (CFTR) protein. To have CF, a baby must get two copies of the CF gene, one from each parent.

Is cystic fibrosis a risk for pregnancy?

Pregnant women with cystic fibrosis are at risk of complications that include: Preterm birth. Gestational diabetes. Hypertension.

Can a woman with cystic fibrosis have a baby? | Ask a doctor

Why can't cystic fibrosis patients have children?

Most men with CF (97 to 98%) are infertile because of an absence of the sperm canal, known as congenital bilateral absence of the vas deferens (CBAVD). The sperm never make it into the semen, making it impossible for them to reach and fertilize an egg through intercourse.

Can cystic fibrosis cause birth defects?

Cystic Fibrosis Birth Defect. Cystic fibrosis is a progressive genetic birth defect that primarily affects the lungs and the digestive system.

What is the longest someone has lived with cystic fibrosis?

Marlene's Story of Living 86 Years With CF | Cystic Fibrosis Foundation.

Can cystic fibrosis patients date each other?

People with cystic fibrosis should never meet each other, as they carry bacteria within their lungs that could be harmful to each other.

Can someone with cystic fibrosis kiss someone with cystic fibrosis?

Is cystic fibrosis contagious through kissing? No. Cystic fibrosis is not contagious, even via kissing, because it's a genetic disease.

Does cystic fibrosis get worse with age?

Outlook. Cystic fibrosis tends to get worse over time and can be fatal if it leads to a serious infection or the lungs stop working properly. But people with cystic fibrosis are now living for longer because of advancements in treatment. Currently, about half of people with cystic fibrosis will live past the age of 40.

Is CF inherited from mother or father?

Cystic fibrosis (CF) is a genetic disease. This means that CF is inherited. A child will be born with CF only if two CF genes are inherited - one from the mother and one from the father. A person who has only one CF gene is healthy and said to be a "carrier" of the disease.

Can you live to be old with cystic fibrosis?

Not only are there more of us with CF, but we are now living longer. Based on the 2021 CF Foundation Patient Registry data, the current life expectancy for CF patients born between 2017 and 2021 is 53 years — a substantial jump from a decade ago when the life expectancy was 38. Now, almost 60% of us are older than 18.

Can I marry someone with cystic fibrosis?

This means that more people with the disease are old enough and healthy enough to become independent adults who go to college, hold down jobs, get married, and have children. However, there are some special considerations when people with CF get married and start a family.

Can two people with cystic fibrosis be together?

That's why it's important for people with CF to stay at least 6 feet away from others with CF and anyone with a cold, flu, or infection. For people with CF, being close to others with the disease puts them at greater risk of getting and spreading dangerous germs and bacteria. This is called cross‐infection.

Why do CF patients have to be 6 feet apart?

Why 6 feet apart? In people with CF, the mucus in the lungs can trap bacteria, causing infection. These infections can be dangerous – even life-threatening – to people with CF. This is why doctors say that patients with CF should stay 6 feet (or more) away from anyone who is sick.

Does a lung transplant cure CF?

Does a lung transplant cure cystic fibrosis? No. Cystic fibrosis is a genetic condition so even though the transplanted lungs will not have CF and will never develop it, the rest of the person's body will continue to have cystic fibrosis.

What to know when dating someone with cystic fibrosis?

Honesty and communication are key. CF impacts everything about my relationship. As a CFer, you get tired quickly and you have issues with side effects and the emotional aspects of handling CF. Intimacy is important in every relationship, but when you have CF, it's important to be honest about what works and doesn't.

How close are they to a cure for cystic fibrosis?

Currently there's no cure for rare types of cystic fibrosis, but researchers are making significant advances. Current treatments for cystic fibrosis are not suitable for all patients. The lack of treatment options is distressing for people suffering from a rare type of this degenerative and life-threatening disease.

Is CF considered a disability?

The Social Security Administration recognizes cystic fibrosis as a serious impairment in its Blue Book under Section 3.04. Applicants with cystic fibrosis are eligible for automatic approval of disability benefits if they suffer from poor lung function and repetitive lung infections.

What is end stage cystic fibrosis?

Common symptoms at the end of life include dyspnea, fatigue, anxiety, anorexia, pain, and cough (see Fast Facts #27, 199, 200). Care providers must balance benefit versus burden of disease-specific treatments such as nebulized medications, NIPPV, and chest physiotherapy.

Which parent passes down cystic fibrosis?

An individual must inherit two non-functioning CF genes – one from each parent – to have CF. If both parents are carriers there is a 1 in 4 (25 percent) chance that both will pass on the non-functioning gene, which would result in a pregnancy affected with cystic fibrosis.

Do both parents need to be carriers for cystic fibrosis?

Cystic fibrosis is inherited. This means it is passed down from parent to child through the genes. Your baby inherited a normal CF gene (N) from one parent, and a mutation of a CF gene (C) from the other parent. This means at least one parent (mother or father) is also a CF carrier.

Which parent passes cystic fibrosis?

A child can inherit CF only if both parents carry a CF gene (that is, each parent either has CF or is a carrier*) and both parents pass the CF gene on to their child. There is nothing that parents do to cause CF in their child and usually they do not know that they are carriers of a CF gene.

Does cystic fibrosis cause miscarriage?

Conclusions. Pregnancy outcomes are generally good in women with cystic fibrosis. Successful pregnancy is possible even in those women with FEV₁ <60% predicted, although such women have higher chance of preterm delivery and a smaller baby.