Can you play sports with NF1?

Participation in individual sports may enable your child with NF1 to experience greater success, especially if coordination and/or attention are a problem. Individual sports can better accommodate the specific needs of your child, encouraging success at the pace of each athlete.

Can you work with NF1?

Having a diagnosis of Neurofibromatosis does not necessarily mean that you will have problems finding and keeping a job. Many people with NF have successful and fulfilling careers employed in an occupation that they enjoy.

Can you live a normal life with NF1?

If there are no complications, the life expectancy of people with NF is almost normal. With the right education, people with NF can live a normal life. Although mental impairment is generally mild, NF1 is a known cause of attention deficit hyperactivity disorder.

Can NF1 stay mild?

Neurofibromatosis type 1 (NF1) is a genetic condition. It causes benign (not cancerous) tumors to grow in and under the skin, often with bone, hormone, and other problems. Most kids with NF1 have mild symptoms that don't limit what they can do.

Does NF1 make you short?

Previous studies on short stature in NF1 have reported that 13-33% of affected individuals are shorter than expected.

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Does NF1 qualify for disability?

Although neurofibromatosis is a serious condition, the Social Security Administration (SSA) does not specifically list the disorder as a disability. But, the symptoms that accompany the condition can be reviewed for benefits.

Does NF1 get worse with age?

Typically, adults with NF1 will develop more neurofibromas over time. They may grow for a period of time and then stop growing. In addition, they may change in shape or color as they grow. Sometimes, they can also be associated with itching or slight discomfort when bumped.

Is NF1 serious?

The symptoms of neurofibromatosis type 1 (NF1) are often mild and cause no serious health problems. But some people will have severe symptoms. The symptoms of NF1 can affect many different areas of the body, but it's unlikely someone will develop all of them.

How do you get rid of NF1 bumps?

There is no known treatment or cure for neurofibromatosis or schwannomatosis. Medication can be prescribed to help with pain. In some cases, growths may be removed surgically or reduced with radiation therapy.

When do freckles appear in NF1?

Symptoms and appearance

Freckles under the arms or in skin folds usually develop during the first 3-5 years of the child's life. The course of NF varies considerably between patients depending on which organs are involved. Individuals with NF1 have a 50% chance of passing this condition on to their offspring.

Does NF1 affect puberty?

Delayed or Early Puberty: Most people with NF1 will start puberty at the expected age range, but some may have precocious (early) or delayed puberty. Small Stature: Affects about 30% of people with NF1 and may be treated with growth hormone.

Can you have café-au-lait spots and not have NF1?

Can you have café-au-lait spots without having neurofibromatosis? Yes. It is very common for people to have a few café-au-lait spots on their bodies without having an underlying condition like neurofibromatosis type 1 (NF1).

Can NF1 tumors be removed?

If cancerous tumors develop with neurofibromatosis—for example, malignant plexiform neurofibromas, which can develop in the arms, legs, or trunk—they can also be surgically removed. For cancerous tumors, surgery may be combined with other treatments for cancer.

Does NF have a disability?

Fifty to sixty percent of children with NF1 will have some form of learning disability. NF1 patients typically have normal intelligence, but experience specific problems with reading, writing and the use of numbers.

What is everyday life like with neurofibromatosis?

In addition to the above medical problems, people with NF1 frequently have learning disabilities, attention deficit, or challenges in social situations. Less commonly, individuals with NF1 may develop a cancer, such as a malignant brain tumor, malignant peripheral nerve sheath tumor, pheochromocytoma, or breast cancer.

Does neurofibromatosis affect mental health?

Neurofibromatosis type 1 (NF1) is often associated with psychiatric disorders, which are more frequent in NF1 than in general population (33% of patients). Dysthymia is the most frequent diagnosis (21% of patients). There is also a high prevalence of depressive mood (7%), anxiety (1-6%), and personality (3%) disorders.

Can you join the Army with NF1?

While NF1 is a disqualifying condition for military duty, it may not initially be clinically apparent until complications such as MPNSTs develop.

How do you shrink neurofibroma?

An investigational drug called selumetinib can shrink tumors in children and young adults with a genetic syndrome called neurofibromatosis type 1 (NF1) and may improve symptoms such as pain and reduced mobility that result from tumors called plexiform neurofibromas, which develop in many people with NF1, according to ...

Can NF1 cause itchy?

Pain & Itching – Itching sometimes happens in NF1 and no one knows why this is so. Medication such as antihistamines or a simple emollient can sometimes help – ask your GP for guidance.

Do all NF1 patients get tumors?

An estimated 3% to 5% of people who have NF1 develop cancerous tumors.

Can NF1 be cured?

There isn't a cure for neurofibromatosis, but signs and symptoms can be managed. Generally, the sooner someone is under the care of a doctor trained in treating neurofibromatosis, the better the outcome.

Can NF1 skip a generation?

Only one parent need be affected to cause a child to have NF1 (autosomal dominant inheritance). NF1 does not skip generations. Sporadic or random pathogenic variants in the gene responsible for NF1 account for the remaining 50% of cases and occur when a child has NF1 but neither parent does.

Can you donate blood if you have neurofibromatosis?

Must not donate if:

Neurofibromatosis is an inherited condition that causes tumours (swellings) on nerve tissue. These tumours are usually not cancerous but occasionally may become malignant. If they are in the brain they may cause epilepsy.

Can NF1 cause leukemia?

Neurofibromatosis type 1 (NF1) is an autosomal dominant genetic disorder caused by mutations in the NF1 gene. Patients with NF1 have a higher risk to develop juvenile myelomonocytic leukemia (JMML) with a possible progression toward acute myeloid leukemia (AML).

Do café-au-lait spots get bigger?

Cafe au lait (ka-FAY o lay) birthmarks are flat areas of darkened skin, anywhere from tan to dark brown. They are permanent and very common. They can occur anywhere on the body, and the size increases as the child grows. Usually, no treatment is needed.