Can you live a full life with Sjogren's?

Life expectancy and primary Sjogren's syndrome

Although life expectancy is not typically affected, patients' quality of life is, and considerably. Secretory glands don't work, resulting in dryness in the eyes, mouth, throat, and other organs, along with complications such as pain, fatigue, and digestive problems.

How long can you live with Sjögren's syndrome?

The mean age of death was 72.1 years (SD = 12.3 years). Serologically, the presence of ANAs was the most frequent finding (75.7%) followed by anti-Ro/SSA antibodies and rheumatoid factor in just under 55%. Extraglandular manifestations were 3.4-fold more common than glandular manifestations (108 [71.1%] vs 31 [20.4%]).

How do people live with Sjogren's syndrome?

Living a healthy lifestyle consisting of an anti-inflammatory diet, adequate sleep, exercise, and minimal stress are an important part of living well with a chronic disease like Sjögren's. Both heat and cool packs can help relieve muscle and joint pain associated with Sjögren's.

Does Sjogren's ever go away?

There's currently no cure for Sjögren's syndrome, but there are several treatments that can help, such as: eye drops that keep your eyes wet (artificial tears) sprays, lozenges (medicated sweets) and gels that keep your mouth wet (saliva substitutes) medicine that helps your body produce more tears and saliva.

Does sjogrens get worse over time?

Symptoms are mild in most people but can be very severe in others. Symptoms can vary over time and may improve, worsen, or even go away completely for periods.

What I have learned living with Sjogren's Syndrome

How serious is sjogrens?

Sjogren's is a serious condition, but timely treatment can mean that complications are less likely to develop, and tissue damage is less likely to occur. Once treated, an individual can usually manage the condition well. Sjogren's can develop at any age, but most diagnoses occur after the age of 40 years.

What should I avoid with Sjogren's syndrome?

Individuals who experience severe xerostomia tend to avoid crunchy foods such as raw vegetables, dry or tough foods such as meats and breads, and sticky foods such as peanut butter. Xerostomia can also affect dental health.

Can Sjogren's stay mild?

There is no cure for Sjögren's syndrome. As with other autoimmune diseases, the severity of Sjögren's varies from person to person. Many patients have a mild disease that only affects the eyes and mouth. Others have symptoms that wax and wane in severity or may even go into remission.

How do you beat Sjogren's syndrome?

Eat well and often. Eating an anti-inflammatory diet is one of the ways to reduce Sjogren's syndrome flares and provide adequate nutrition, thereby reducing fatigue. Ensure that your diet consists of food with high fiber, healthy fats, and spices such as garlic, ginger, and turmeric.

Should you get the Covid vaccine if you have Sjogren's syndrome?

As a person with Sjögren's, should I receive a vaccination for COVID-19? Yes. We recommend that all people with Sjögren's should be vaccinated, with the exception of children under the age of 16 (since children were not included in the trials that led to the EUA for the Pfizer and Moderna vaccines).

Can you work with Sjogren's syndrome?

Sjogren's Syndrome can be disabling, preventing your ability to work and earn a living. Sjogren's flare-ups lead to joint and muscle pain, fatigue, and dryness of the eyes and mouth. Some people suffer from swollen glands, skin rashes, and weakness and numbness in the extremities.

How does sjogrens make you feel?

You may experience dryness in your nose or throat or on your skin. Sjögren's syndrome can also affect the joints, lungs, kidneys, blood vessels, digestive organs and nerves, causing symptoms such as: Swollen glands, specifically behind the jaw and in front of the ears. Joint pain, swelling or stiffness.

Does having Sjogren's mean you are immunocompromised?

As a note – not all Sjögren's patients have compromised immune systems. This specific risk factor is for those who regularly take drugs to suppress the immune system.

How fast does Sjogren's progress?

The condition may progress slowly, so the typical symptoms of dry eyes and mouth may take years to show. However, rapid onset can also occur. Symptoms can be mild, moderate or severe, and the progression is often unpredictable.

What drugs make sjogrens worse?

Avoid medicines that are known to cause dry eyes. These include antihistamines, diuretics, and some antidepressants. Talk with your doctor if you take any of these medicines. Sometimes the benefits of a medicine outweigh the risks.

Is primary Sjogren's worse than secondary?

SSc appears to be less severe in patients with SS-SSc than SSc alone with a lower frequency of lung fibrosis (P = 0.05). Compared with patients with pSS or SSc alone, SS-SSc patients were more likely to have another autoimmune disorder and other autoantibodies (SS-SSc vs pSS, P = 0.02 and P = 0.03, respectively).

What vitamins should I take with sjogrens?

Can Sjogren's turn into lupus?

Most often, the co-occurring autoimmune disease is rheumatoid arthritis. Other individuals with secondary Sjogren's may have lupus, scleroderma, primary biliary cirrhosis, or a different kind of autoimmune disease.

What triggers a Sjogren's flare?

Autoimmune diseases such as Sjogren's syndrome are highly likely to be triggered by environmental factors such as pollution, infections, certain medications, diet, and allergy-causing agents. Make a note of potential environmental triggers, and try to steer clear of them as much as possible.

Does Sjogren's syndrome ever go into remission?

The damage to salivary glands in Sjogren's syndrome cannot be reversed, but the symptoms can be controlled and, rarely, the disease goes into remission.

How did you know you had Sjogren's?

Blood and urine tests, to look for the presence of antibodies common in Sjögren's syndrome. The results of an ANA (antinuclear antibody) test will determine if you have an autoimmune disorder. Schirmer's test, to see if your tear glands are producing enough tears to keep your eyes moist.

Are there any new treatments for Sjogren's syndrome?

Several new, potentially disease-modifying drugs in the pipeline have renewed clinical optimism. St. Clair says existing treatment options include sialagogues such as pilocarpine and cevimeline that are approved by the US Food and Drug Administration for the treatment of glandular manifestations of Sjögren syndrome.

What does hydroxychloroquine do for sjogrens?

Hydroxychloroquine, an anti-malarial, has been widely used to treat autoimmune conditions like lupus, rheumatoid arthritis, and Sjögren's. It works to modulate the immune system, which is overly active in these disorders, and also seems to reduce lipid levels and protect against blood clots and diabetes.

What organs does Sjogren's syndrome affect?

Sjögren's syndrome can also affect other body organ systems. These organs include the skin, joints, muscles, blood, lung, heart, kidney, and nerves.

What does Sjögren's fatigue feel like?

Sjogren's Syndrome patients often complain of mental fatigue or “brain fog.” Brain fog impairs focus, causes fuzzy concentration, and contributes to difficulty in problem-solving.