What type of doctor treats PANDAS?

Doctors who treat PANDAS syndrome
PANDAS syndrome
Pediatric autoimmune neuropsychiatric disorder associated with streptococcal infections (PANDAS) is a disorder that results from infection with streptococcal-A, commonly referred to as strep, or strep throat.
https://pandasnetwork.orgwhat-is-pandas
come from a variety of backgrounds. Pediatrics, neurology, hematology/oncology, psychology, psychiatry, integrative medicine, immunology and rheumatology are just a few of the specialties of PANDAS doctors.
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Is PANDAS a neurological disorder?

Summary. Pediatric autoimmune neuropsychiatric disorders associated with Streptococcus infections (PANDAS) is a neurological and psychiatric condition in which symptoms are brought on or worsened by a Streptococcal (strep) infection. PANDAS is a subtype of pediatric acute-onset neuropsychiatric syndrome (PANS).
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Who can diagnose pans or PANDAS?

To diagnose PANDAS or PANS, doctors will take time talking to you and asking questions about your child's symptoms. They will do an exam and test for infections. Treatment starts with medicine to take care of the infection. Treatment also includes cognitive behavioral therapy for OCD.
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How do doctors treat PANDAS?

Treatment usually involves medication and therapy. Antibiotics. Your child's doctor will treat the underlying strep infection with antibiotics. It usually takes a week or two, although some kids improve within days.
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How do you get diagnosed with PANDAS?

How is PANDAS diagnosed?
  1. Presence of OCD, a tic disorder, or both.
  2. Pediatric onset of symptoms (i.e., age 3 to puberty)
  3. Episodic course of symptom severity (see information below)
  4. Association with group A Beta-hemolytic strep infection, such as a positive throat culture for strep or history of scarlet fever.
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#OurPANDASJourney - The Vilaranda Family



Is PANDAS treatment covered by insurance?

Covered PANDAS/PANS treatment includes, but is not limited to, intravenous immunoglobulin (IVIg) therapy. Harvard Pilgrim's commercial Intravenous Immune Globulin (IVIG) Medical Policy has been updated to reflect the new coverage.
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What is the best antibiotic to treat PANDAS?

Azithromycin and penicillin have been utilized in the treatment of PANDAS with observations of improvement in neuropsychiatric symptoms.
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How are PANDAS treated in adults?

The first-line treatment for PANDAS should be antibiotics to kill the Streptococcus bacteria, just as with any strep infection. If symptoms do not improve with antibiotics, a doctor will recommend managing the tics and OCD with several strategies. These may include: Medication: Medication can help ease tics and OCD.
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How are PANDAS diagnosed in adults?

HOW DO YOU TEST FOR PANS & PANDAS?
  1. Lyme disease and co-infections like Bartonella.
  2. Mycoplasma pneumonia.
  3. Influenza (H1N1)
  4. Epstein-Barr virus.
  5. Chickenpox.
  6. Group A strep testing (rapid test, culture)
  7. Antibody testing, including anti-DNase B and antistreptolysin O (ASO)
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Can PANDAS last into adulthood?

PANDAS occurs in adults. Period. If an adult can acquire Rheumatic Fever or Glomerulonephritis after a strep infection, that adult can acquire PANDAS. If an adult can acquire Lyme disease, mycoplasma, and a myriad of viral infections, that adult can acquire PANDAS.
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Can PANDAS go undetected for years?

The strep bacteria which produce post-infectious sequelae, such as PANDAS, are often not symptomatic for pharyngitis; they produce minimal or no symptoms of sore throat, fever, abdominal pain, etc, so the infections go undetected and untreated for prolonged periods of time.
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Is pans an autoimmune disorder?

PANS and PANDAS are infection-induced autoimmune conditions that disrupt a patient's normal neurologic functioning, resulting in a sudden onset of Obsessive Compulsive Disorder (OCD) and/or motor tics.
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What blood test is done for PANDAS?

What does the Cunningham Panel test for? The Cunningham Panel is a unique series of high-complexity blood tests that aid clinicians in diagnosing infection-triggered autoimmune neuropsychiatric syndromes such as PANDAS/PANS.
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Can PANDAS symptoms come and go?

In PANDAS, symptoms come on abruptly (flare) and remit. This may come in cycles and include mental health disturbances, physical symptoms and behavioral issues.
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Does PANDAS cause brain damage?

If the severe symptoms do not stop and persist over many months, permanent cognitive damage can occur. PANDAS children may have moderate to dramatic improvement with antibiotics within one week of treatment, however, further interventions may be needed.
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How do you treat PANDAS naturally?

They can be found in the form of dietary supplements as well as in foods like yogurt, sauerkraut, and kimchi. One way that probiotics may be helpful for PANDAS is in preventing digestive problems due to antibiotics, a common treatment for PANDAS. Research has found that probiotics show promise for this purpose.
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What happens if PANDAS go untreated?

Symptoms of PANDAS can leave your child unable to function at school or in social situations. Untreated, symptoms of PANDAS may continue to worsen and can result in permanent cognitive damage. For some children, PANDAS can become a chronic autoimmune condition.
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Can PANDAS be cured with antibiotics?

If symptoms of PANS or PANDAS persist despite treatment, or if no infection can be found, then the patient should be referred to our service for comprehensive evaluation. Antibiotics can dramatically improve many patients' neuropsychiatric symptoms.
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Can PANDAS symptoms be mild?

Mild: Symptoms are significant and cause disruptions at home and/or school. They occupy a few hours a day. The PANDAS Physicians Network (PPN) flowcharts for diagnosis and treatment will help clinicians evaluate their patients and determine the best course of treatment.
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Does ibuprofen help with PANDAS?

NSAID Anti-Inflammatories

Oral nonsteroidal anti-inflammatory drugs (NSAIDs) such as ibuprofen or naproxen may be beneficial for PANS/PANDAS patients. The medications appear to be particularly useful for exacerbations (or “mini-flares”) which occur in the weeks following immunotherapy.
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What causes a PANDAS flare?

While strep is the initial trigger, PANDAS patients can have recurrent symptom exacerbations (flares) later in the disease when exposed to other (non-strep) infections.
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Do steroids help PANDAS?

Conclusion: Corticosteroids may be a helpful treatment intervention in patients with new-onset and relapsing/remitting PANS and PANDAS, hastening symptom improvement or resolution. When corticosteroids are given earlier in a disease flare, symptoms improve more quickly and patients achieve clinical remission sooner.
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Do PANDAS pans disappear?

PANS/PANDAS is an “episodic illness”, meaning symptoms can go away for a while after an infection is treated, but they can come back again, in what is called a flare-up or relapse of the disorder.
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Does insurance cover IVIG for pandas?

Although some insurance plans cover IVIG for other disorders, most insurance companies do not cover IVIG for PANDAS unless in Indiana or Illinois or a few other states.
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How do I pay for IVIG?

The specialty pharmacy will bill Medicare for your IVIG drugs and will bill Medicare for the per-visit payment for nursing and supplies needed to administer the IVIG. You will be responsible for paying any applicable Medicare Part B deductible or coinsurance.
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