Is NF1 a learning disability?

Fifty to sixty percent of children with NF1 will have some form of learning disability. NF1 patients typically have normal intelligence, but experience specific problems with reading, writing and the use of numbers. Over 50% of children with NF1 also have issues with attention and executive function.

Does NF1 count as a disability?

Although neurofibromatosis is a serious condition, the Social Security Administration (SSA) does not specifically list the disorder as a disability.

Does neurofibromatosis affect learning?

As many as 80% of all children with neurofibromatosis will have associated difficulties that affect learning, including attention problems, memory problems, spatial perception difficulties, and selective problems in reading or mathematics.

What type of disability is neurofibromatosis?

Neurocognitive profiles of learning disabled children with neurofibromatosis type 1. Neurofibromatosis 1 (NF1) is a genetic condition generally associated with intellectual deficiency and learning disabilities.

Does NF1 affect memory?

Attention and executive functions appear to also be compromised in individuals with NF1, which are a factor in difficulties in receptive language, memory, academic skills, and adaptive skills.

ADHD, Learning Disabilities, and Autism in NF1 by Dr. Tamar Green

Does NF1 cause ADHD?

Attention deficits have been linked to the NF1 phenotype and show an incidence of 40–50% in NF1 patients (6). The presence of ADHD in children with NF1 is associated with poorer performance in cognitive function, learning, social skills, and academic achievement.

Does NF1 get worse with age?

Typically, adults with NF1 will develop more neurofibromas over time. They may grow for a period of time and then stop growing. In addition, they may change in shape or color as they grow. Sometimes, they can also be associated with itching or slight discomfort when bumped.

Is NF1 a neurological disorder?

Neurofibromatosis (NF) is a genetic neurological disorder that can affect the brain, spinal cord, nerves and skin. Tumors, or neurofibromas, grow along the body's nerves or on or underneath the skin. Scientists have classified NF into two distinct types: neurofibromatosis type 1 (NF1) and NF2.

Is NF1 a disability UK?

Having a diagnosis of Neurofibromatosis does not mean that you are automatically a "disabled" person. NF is variable: some people have few if any health problems. Others will have significant health factors that affect their daily life and consequently may restrict what work they can do.

Is NF1 linked to autism?

Introduction Children with the single-gene disorder neurofibromatosis type 1 (NF1) appear to be at an increased risk for autism spectrum disorder (ASD) and exhibit a unique social-cognitive phenotype compared with children with idiopathic ASD.

Does neurofibromatosis affect behavior?

The most common complications of NF1 are cognitive and behavioral deficits. Up to 80% of children with NF1 experience cognitive and behavioral difficulties involving different domains.

Does NF1 affect teeth?

In particular, complex retentions of teeth have to be expected in NF1 (25). Two oral health studies on NF1 patients have already been performed in other countries. A study from Canada (27) revealed significantly higher rates of decayed teeth in patients with NF1 than in a reference group of healthy individuals.

Can a brain tumor cause learning disability?

Learning difficulties in children with brain tumours. Children who have, or had, a brain tumour may develop learning difficulties at some time. The difficulties can be due to a number of factors, such as time out from school or the side-effects of the tumour and its treatment. They may need some extra help.

Can I get SSI for NF1?

If you or your dependent has neurofibromatosis, you may qualify for Social Security disability benefits. While the Social Security Administration (SSA) does not list the condition specifically, the SSA will consider many of the symptoms typically suffered by those who have neurofibromatosis.

Can you live a normal life with neurofibromatosis?

Children and adults with NF1 can have a variety of symptoms and medical problems which can change across a lifespan. Most people with NF1 have a normal life expectancy. Because many of the other clinical features of NF1 develop as an individual gets older, getting the correct diagnosis may take several years.

How do you get rid of NF1 bumps?

There is no known treatment or cure for neurofibromatosis or schwannomatosis. Medication can be prescribed to help with pain. In some cases, growths may be removed surgically or reduced with radiation therapy.

What is the life expectancy of someone with NF1?

If there are no complications, the life expectancy of people with NF is almost normal. With the right education, people with NF can live a normal life. Although mental impairment is generally mild, NF1 is a known cause of attention deficit hyperactivity disorder.

Can NF1 be mild?

The symptoms of neurofibromatosis type 1 (NF1) are often mild and cause no serious health problems. But some people will have severe symptoms. The symptoms of NF1 can affect many different areas of the body, but it's unlikely someone will develop all of them.

Is NF1 fatal?

Neurofibromatosis Type 1 (NF1)

In most cases, symptoms of NF1 are relatively mild, allowing patients to live normal and productive lives. However, the disorder can also be debilitating and, in some cases, life-threatening.

Can NF1 skip a generation?

Only one parent need be affected to cause a child to have NF1 (autosomal dominant inheritance). NF1 does not skip generations. Sporadic or random pathogenic variants in the gene responsible for NF1 account for the remaining 50% of cases and occur when a child has NF1 but neither parent does.

Will there be a cure for NF1?

There isn't a cure for neurofibromatosis, but signs and symptoms can be managed. Generally, the sooner someone is under the care of a doctor trained in treating neurofibromatosis, the better the outcome.

At what age is NF1 diagnosed?

Because children with NF1 get more signs and symptoms as they grow, the diagnosis may not be made right away. Almost all kids with the condition are diagnosed by the time they're 8 years old.

Can you donate blood if you have neurofibromatosis?

Must not donate if:

Neurofibromatosis is an inherited condition that causes tumours (swellings) on nerve tissue. These tumours are usually not cancerous but occasionally may become malignant. If they are in the brain they may cause epilepsy.

How does NF1 affect the brain?

Complications of NF1 include: Neurological problems. Learning and thinking difficulties are the most common neurological problems associated with NF1 . Uncommon complications include epilepsy and the buildup of excess fluid in the brain.

Can you have café-au-lait spots and not have NF1?

Can you have café-au-lait spots without having neurofibromatosis? Yes. It is very common for people to have a few café-au-lait spots on their bodies without having an underlying condition like neurofibromatosis type 1 (NF1).