How would you describe your lupus?

Overview. Lupus is a disease that occurs when your body's immune system attacks your own tissues and organs (autoimmune disease). Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.
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How do people describe lupus?

Lupus is an autoimmune disease. In some ways, lupus represents a kind of allergic reaction by the body, in which the immune system sees the body's own healthy tissues and cells as foreign. Lupus is a chronic disease. This means that anyone who develops lupus will have lupus for the rest of his or her life.
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How do you describe a lupus flare?

A lupus "flare" or "flare up" is when your lupus symptoms worsen and you feel ill as a result. The formal definition of a flare is: A measurable increase in disease activity in one or more organ systems involving new or worse clinical signs and symptoms and/or lab measurements.
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What are the 11 characteristics of lupus?

Common symptoms of lupus include extreme fatigue, joint pain or swelling, swelling in the hands, feet, or around the eyes; fever, headache, sensitivity to light, chest pain when inhaling deeply, butterfly-shaped rash on the cheeks and nose, raised red patches on the skin, sores in the mouth or nose, and arthritis in ...
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What do you look like if you have lupus?

A tell-tale sign of lupus is a butterfly-shaped rash across the cheeks and bridge of the nose. Other common skin problems include sensitivity to the sun with flaky, red spots or a scaly, purple rash on various parts of the body, including the face, neck, and arms.
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Lupus - Signs



What are the top 5 signs of lupus?

  1. Fatigue. About 90 percent of people with lupus experience some level of fatigue. ...
  2. Unexplained fever. One of the early symptoms of lupus is a low-grade fever for no apparent reason. ...
  3. Hair loss. ...
  4. Skin rash or lesions. ...
  5. Pulmonary issues. ...
  6. Kidney inflammation. ...
  7. Painful, swollen joints. ...
  8. Gastrointestinal problems.
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What are the top 10 signs of lupus?

Top 10 Most Common Lupus Symptoms Include:
  • Achy or swollen joints (arthralgia)
  • Unexplained fever (more than 100° F)
  • Swollen joints (arthritis)
  • Prolonged or extreme fatigue.
  • Skin rash, including a butterfly-shaped rash across the cheeks and nose.
  • Pain in the chest when breathing deeply (pleurisy)
  • Hair loss.
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What does a lupus flare feel like?

During a lupus flare, you could expect to have rashes, joint pain, and possibly a new symptom, too. Some common symptoms of lupus flares include: Painful and swollen joints. Rashes.
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What are the 4 types of lupus?

But there are four kinds of lupus:
  • Systemic lupus erythematosus (SLE), the most common form of lupus.
  • Cutaneous lupus, a form of lupus that is limited to the skin.
  • Drug-induced lupus, a lupus-like disease caused by certain prescription drugs.
  • Neonatal lupus, a rare condition that affects infants of women who have lupus.
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What should lupus patients avoid?

5 Things to Avoid if You Have Lupus
  • (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  • (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  • (3) Garlic. ...
  • (4) Alfalfa Sprouts. ...
  • (5) Echinacea.
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Does lupus qualify for disability?

For Social Security's purposes, lupus qualifies as a disability when it meets these conditions: It involves two or more organs or body systems. It includes at least two major signs or symptoms, such as severe fatigue, fever, malaise, and involuntary weight loss.
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How long do lupus flares typically last?

How long does your typical lupus flare last? Nearly 63% of people reported flares that last one week or less. Of that group, almost 75% of people experienced flares lasting between two and 6 six days. Typical flares of two weeks were reported by over 1/4 of poll participants.
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Is lupus a terminal illness?

In most cases, lupus is not fatal. In fact, 80% to 90% of people who have this autoimmune disease will likely live a normal life span. Still, some people do die from the disease, in which your immune system attacks your body's organs and tissues.
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How do I explain lupus to my boss?

Talking to your employer
  1. Start by talking to your healthcare provider about the demands of your job and what aspects of your job are more challenging because of lupus.
  2. Ask your healthcare provider for a letter outlining your diagnosis and what accommodations you might need.
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What are the 3 types of lupus?

There are three types: Acute cutaneous lupus. Chronic cutaneous lupus erythematosus, or discoid lupus erythematosus (DLE) Subacute cutaneous lupus erythematosus.
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What does joint pain from lupus feel like?

Lupus can also cause inflammation in the joints, which doctors call “inflammatory arthritis.” It can make your joints hurt and feel stiff, tender, warm, and swollen. Lupus arthritis most often affects joints that are farther from the middle of your body, like your fingers, wrists, elbows, knees, ankles, and toes.
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What can trigger lupus?

An infection, a cold or a viral illness. An injury, particularly traumatic injury. Emotional stress, such as a divorce, illness, death in the family, or other life complications. Anything that causes stress to the body, such as surgery, physical harm, pregnancy, or giving birth.
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What is the most serious form of lupus?

There are several different types of lupus: Systemic lupus erythematosus (SLE) is the most common and most serious type of lupus. SLE affects all parts of the body. Cutaneous lupus erythematosus, which affects only the skin.
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What organ does lupus affect the most?

Kidneys About one half of people with lupus experience kidney involvement, and the kidney has become the most extensively studied organ affected by lupus. Lungs About 50% of people with SLE will experience lung involvement during the course of their disease.
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Do you gain weight with lupus?

Muscle pain — Muscle pain or tenderness is common in people with lupus; rarely, some people also notice muscle weakness. Weight changes — Lupus can sometimes cause weight loss or weight gain.
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Is lupus pain worse at night?

The first signs of AVN can be pain in your knees, hips, or shoulders. This can lead to stiff joints and muscle spasms. Your pain may increase as the condition advances, especially at night.
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What were your first lupus symptoms?

Fatigue, fever, joint pain and weight changes are usually the first signs of lupus. Some adults may have a period of SLE symptoms known as flares, which may occur frequently, sometimes even years apart and resolve at other times—called remission. Other symptoms include: Sun sensitivity.
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Does lupus make you smell?

Surprisingly, an impairment in smell may be an important manifestation in systemic lupus erythematosus (SLE). Indeed, the sense of smell may be a clue to what is going wrong in the patient's nervous system, pointing to a new line of brain research to understand pathogenesis.
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What foods trigger lupus flare ups?

Alfalfa and garlic are two foods that probably shouldn't be on your dinner plate if you have lupus. Alfalfa sprouts contain an amino acid called L-canavanine. Garlic contains allicin, ajoene, and thiosulfinates, which can send your immune system into overdrive and flare up your lupus symptoms.
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Can you have lupus for years and not know it?

Lupus symptoms can also be unclear, can come and go, and can change. On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.
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