How quickly does Sjogren's progress?

Sjögren Syndrome is a chronic disease that progresses very slowly over time. Because of this, there may be a period of up to 10 years between the onset of symptoms and the diagnosis of the disease.
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How long does Sjogren's take to develop?

These dryness symptoms can occur in other conditions — including chronic fatigue syndrome and fibromyalgia — and can be side effects of a variety of commonly used medications. On average, it takes three years from the time symptoms are noticed to reach a Sjögren's syndrome diagnosis.
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Does sjogrens get worse over time?

Symptoms are mild in most people but can be very severe in others. Symptoms can vary over time and may improve, worsen, or even go away completely for periods.
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Are there stages of Sjogren's syndrome?

We divided SS patients into three stages: stage I is glandular SS, stage II is extraglandular SS, and stage III is extraglandular SS with lymphoid malignancy. The lymphoaggressive nature of the disease appears to lead SS patients from stage I to II and from stage II to III.
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Does sjogrens come on quickly?

The condition may progress slowly, so the typical symptoms of dry eyes and mouth may take years to show. However, rapid onset can also occur. Symptoms can be mild, moderate or severe, and the progression is often unpredictable.
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Sjogren's Syndrome: Beyond Dry Eyes and Mouth by Frederick Vivino, MD



What were your first symptoms of Sjogren's?

The two main symptoms of Sjogren's syndrome are:
  • Dry eyes. Your eyes might burn, itch or feel gritty — as if there's sand in them.
  • Dry mouth. Your mouth might feel like it's full of cotton, making it difficult to swallow or speak.
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Can Sjogren's stay mild?

There is no cure for Sjögren's syndrome. As with other autoimmune diseases, the severity of Sjögren's varies from person to person. Many patients have a mild disease that only affects the eyes and mouth. Others have symptoms that wax and wane in severity or may even go into remission.
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What aggravates Sjogren's syndrome?

Trans fats are found in foods made with partially hydrogenated vegetable oils, like many types of fried and fast foods. In addition to raising the risk of heart disease, they have a pronounced inflammatory effect on the body that can worsen the symptoms of Sjogren's syndrome.
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How long does a Sjogren's flare last?

With bad flares, morning stiffness and fatigue may last all day and greatly interfere with people's lives. To the question "how long does a flare last?" the answer is that they can persist for weeks or months unless there is a change in treatment.
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What does Sjögren's fatigue feel like?

Sjogren's Syndrome patients often complain of mental fatigue or “brain fog.” Brain fog impairs focus, causes fuzzy concentration, and contributes to difficulty in problem-solving.
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How do you stop Sjogren's progression?

Eat well and often. Eating an anti-inflammatory diet is one of the ways to reduce Sjogren's syndrome flares and provide adequate nutrition, thereby reducing fatigue. Ensure that your diet consists of food with high fiber, healthy fats, and spices such as garlic, ginger, and turmeric.
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How severe can Sjogren's get?

If Sjögren's syndrome isn't treated appropriately, significant, long-term complications could result that affect your eyes, mouth, lungs, kidneys, liver or lymph nodes — complications including blindness, significant dental destruction and non-Hodgkin lymphoma.
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What does Sjogren's pain feel like?

Your joints may be painful and swollen due to inflammation, or you might feel that various parts of your body, such as your muscles, are achy and tender. Some people with this condition have headaches and migraines.
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How accurate is the blood test for Sjogren's syndrome?

Blood tests

In Sjögren's syndrome, the immune system produces antibodies that attack healthy areas of the body. These can be found during a blood test. But not everyone with Sjögren's syndrome has these antibodies, so you may have the condition even if a blood test does not find them.
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Can you have Sjogren's and not know it?

Facts about Sjögren's syndrome

Sjögren's goes undiagnosed in up to 50% of cases, in part because the disease resembles many other conditions and may co-occur with other autoimmune diseases such as lupus or fibromyalgia.
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What does a Sjogren's tongue look like?

a smooth, red tongue. a change in how food tastes. dry, sore and cracked skin at the corners of your lips. problems such as tooth decay, gum disease, mouth ulcers, and oral thrush (a fungal infection that can cause a raw, red or white tongue)
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What should I avoid with Sjögren's syndrome?

Individuals who experience severe xerostomia tend to avoid crunchy foods such as raw vegetables, dry or tough foods such as meats and breads, and sticky foods such as peanut butter. Xerostomia can also affect dental health.
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Is primary Sjögren's worse than secondary?

SSc appears to be less severe in patients with SS-SSc than SSc alone with a lower frequency of lung fibrosis (P = 0.05). Compared with patients with pSS or SSc alone, SS-SSc patients were more likely to have another autoimmune disorder and other autoantibodies (SS-SSc vs pSS, P = 0.02 and P = 0.03, respectively).
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What drugs make sjogrens worse?

Avoid medicines that are known to cause dry eyes. These include antihistamines, diuretics, and some antidepressants. Talk with your doctor if you take any of these medicines. Sometimes the benefits of a medicine outweigh the risks.
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What can mimic Sjogren's?

Other autoimmune disorders may also mimic Sjogren's.
...
Conditions that mimic Sjogren's
  • tricyclic antidepressants such as amitriptyline (Elavil) and nortriptyline (Pamelor)
  • antihistamines such as diphenhydramine (Benadryl) and cetirizine (Zyrtec)
  • oral contraceptives.
  • blood pressure medications.
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What does hydroxychloroquine do for sjogrens?

Hydroxychloroquine, an anti-malarial, has been widely used to treat autoimmune conditions like lupus, rheumatoid arthritis, and Sjögren's. It works to modulate the immune system, which is overly active in these disorders, and also seems to reduce lipid levels and protect against blood clots and diabetes.
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Can Sjogren's turn into lupus?

Most often, the co-occurring autoimmune disease is rheumatoid arthritis. Other individuals with secondary Sjogren's may have lupus, scleroderma, primary biliary cirrhosis, or a different kind of autoimmune disease.
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Should you get the Covid vaccine if you have Sjögren's syndrome?

As a person with Sjögren's, should I receive a vaccination for COVID-19? Yes. We recommend that all people with Sjögren's should be vaccinated, with the exception of children under the age of 16 (since children were not included in the trials that led to the EUA for the Pfizer and Moderna vaccines).
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Does having Sjögren's mean you are immunocompromised?

Are patients with Sjögren's Immunocompromised/Immunosuppressed? Not all Sjögren's patients have compromised immune systems. This specific risk factor is for those who regularly take drugs to suppress the immune system.
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Can you live a normal life with sjogrens?

Life expectancy and primary Sjogren's syndrome

Although life expectancy is not typically affected, patients' quality of life is, and considerably. Secretory glands don't work, resulting in dryness in the eyes, mouth, throat, and other organs, along with complications such as pain, fatigue, and digestive problems.
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