How does lupus affect daily life?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.
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How does lupus affect quality of life?

According to the Lupus Research Alliance, about half of all people with lupus experience cognitive difficulties with thought processes. Around 1 in 5 people experience headaches, memory loss, mood swings, and stroke. Blood clots might also develop. These might also lead to dangerous complications, such as stroke.
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Can a person with lupus live a normal life?

Many people with lupus can minimize flares, lessen the burden of the disease and live a quality life by following their treatment plan and taking care of themselves. In fact, nearly 90 percent of people with lupus live to a normal life expectancy.
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What does lupus affect the most?

SLE can affect people of all ages, including children. However, women of childbearing ages—15 to 44 years—are at greatest risk of developing SLE. Women of all ages are affected far more than men (estimates range from 4 to 12 women for every 1 man). Learn more about lupus in women.
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What lifestyle causes lupus?

“Recognized causes of lupus flares include sun exposure, infections, and very importantly, noncompliance with prescribed medication,” says Dr. Kramer. Additionally, emotional or physical stress may play a role, “although it is difficult to quantify what this effect may be.
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How Lupus Affects the Quality Of Life



What should lupus patients avoid?

5 Things to Avoid if You Have Lupus
  • (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  • (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  • (3) Garlic. ...
  • (4) Alfalfa Sprouts. ...
  • (5) Echinacea.
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How can I improve my life with lupus?

10 Tips to Improve Living With Lupus
  1. Exercise for Stress Reduction and Joint Health. Alamy. "Regular exercise is important for people with lupus in order to maintain a healthy weight. ...
  2. Get Enough Sleep. Jovo Jovanovic/Stocksy. ...
  3. Consider Vitamin D. Shutterstock. ...
  4. Ask Your Doctor About Alcohol. Di Na/Stocksy.
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How does lupus make you feel?

They may be painless, or you may have soreness or dry mouth. Prolonged or extreme fatigue. You may feel tired or exhausted even when you get enough sleep. Fatigue can also be a warning sign of a lupus flare.
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What are the top 5 signs of lupus?

The list of potential symptoms of lupus is lengthy. Other symptoms include oral ulcers, enlarged lymph nodes, muscle pain, chest pain, osteoporosis, and depression. Rare symptoms include anemia, dizziness, and seizures.
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What are the top 10 signs of lupus?

Top 10 Most Common Lupus Symptoms Include:
  • Achy or swollen joints (arthralgia)
  • Unexplained fever (more than 100° F)
  • Swollen joints (arthritis)
  • Prolonged or extreme fatigue.
  • Skin rash, including a butterfly-shaped rash across the cheeks and nose.
  • Pain in the chest when breathing deeply (pleurisy)
  • Hair loss.
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Does lupus change your personality?

People with lupus may experience unpredictable changes in moods and personality traits. This can include feelings of anger and irritability. These may be related to the disease process or, in some cases, the use of corticosteroid medications.
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Does lupus qualify for disability?

For Social Security's purposes, lupus qualifies as a disability when it meets these conditions: It involves two or more organs or body systems. It includes at least two major signs or symptoms, such as severe fatigue, fever, malaise, and involuntary weight loss.
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What are the 6 stages of lupus?

Stages of lupus nephritis
  • Class I: Minimal mesangial lupus nephritis.
  • Class II: Mesangial proliferative lupus nephritis.
  • Class III: Focal lupus nephritis (active and chronic, proliferative and sclerosing)
  • Class IV: Diffuse lupus nephritis (active and chronic, proliferative and sclerosing, segmental and global)
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Can you work with lupus?

Many people with lupus are able to continue to work, although they may need to make changes in their work environment. Flexible work hours, job-sharing, and telecommuting may help you to keep working. It may be helpful to begin to make such arrangements soon after you have been diagnosed with lupus.
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Is lupus a death sentence?

Lupus is not a death sentence. Most patients live normal, healthy, and full lives. They may need to modify things such as sun exposure, stress levels, etc. to maintain good health.  It is important that you see a rheumatologist and follow his/her recommendations.
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Can you drink alcohol with lupus?

Meds don't mix

“When people with lupus drink, the most important considerations are alcohol-medication interactions, effects on the liver, and increased risk of GI (gastrointestinal tract) bleeding,” says Karen H.
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Does lupus make you sleep a lot?

Lupus and Fatigue. Fatigue is a very common complaint among those living with lupus. HSS Rheumatologist, Dr. Jessica Berman indicates that research estimates 40% of lupus patients have persistent severe fatigue, meaning that the fatigue stays for a long period of time.
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What were your first signs of lupus?

Fatigue, fever, joint pain and weight changes are usually the first signs of lupus. Some adults may have a period of SLE symptoms known as flares, which may occur frequently, sometimes even years apart and resolve at other times—called remission. Other symptoms include: Sun sensitivity.
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Can you gain weight from lupus?

Muscle pain — Muscle pain or tenderness is common in people with lupus; rarely, some people also notice muscle weakness. Weight changes — Lupus can sometimes cause weight loss or weight gain.
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What are the 11 symptoms of lupus?

Eleven common symptoms of lupus include:
  • Extreme fatigue.
  • Joint pain or swelling.
  • Swelling in the hands, feet, or around the eyes.
  • Fever.
  • Headache.
  • Sensitivity to light.
  • Chest pain when inhaling deeply caused by inflammation in the lining of the lungs.
  • Butterfly-shaped rash on the cheeks and nose.
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Is having lupus serious?

Lupus can cause serious kidney damage, and kidney failure is one of the leading causes of death among people with lupus. Brain and central nervous system. If your brain is affected by lupus, you may experience headaches, dizziness, behavior changes, vision problems, and even strokes or seizures.
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Is lupus pain worse at night?

The first signs of AVN can be pain in your knees, hips, or shoulders. This can lead to stiff joints and muscle spasms. Your pain may increase as the condition advances, especially at night.
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What are signs of lupus flare-ups?

Common symptoms of lupus flare-ups

Extreme fatigue. Skin rashes. Fever. Joint pain or swelling.
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Does lupus get worse with age?

With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.
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Does drinking water help lupus?

While there is no lupus-specific diet, being mindful of what you put in your body, eating healthy and staying hydrated is very important for lupus warriors to feel their best.
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