How does a person with lupus feel?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.
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How do you feel when you have lupus?

They may be painless, or you may have soreness or dry mouth. Prolonged or extreme fatigue. You may feel tired or exhausted even when you get enough sleep. Fatigue can also be a warning sign of a lupus flare.
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What a lupus flare feels like?

Living with Lupus

There are warning signs that the body will use to communicate that a lupus flare is coming, such as tiredness, pain, rash, stomachache, severe headache and dizziness.
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What does a person with lupus experience?

Joint pain, stiffness and swelling. Butterfly-shaped rash on the face that covers the cheeks and bridge of the nose or rashes elsewhere on the body. Skin lesions that appear or worsen with sun exposure. Fingers and toes that turn white or blue when exposed to cold or during stressful periods.
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How would you describe lupus pain?

The pain often moves from joint to joint. Joint pain, swelling and stiffness can be the main symptoms for some people with lupus. In most cases, lupus is unlikely to cause permanent damage or change the shape of joints. But it can sometimes cause serious joint problems.
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Living with Lupus: a patient perspective



What are the top 5 signs of lupus?

The list of potential symptoms of lupus is lengthy. Other symptoms include oral ulcers, enlarged lymph nodes, muscle pain, chest pain, osteoporosis, and depression. Rare symptoms include anemia, dizziness, and seizures.
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Does lupus make you sleep a lot?

Lupus and Fatigue. Fatigue is a very common complaint among those living with lupus. HSS Rheumatologist, Dr. Jessica Berman indicates that research estimates 40% of lupus patients have persistent severe fatigue, meaning that the fatigue stays for a long period of time.
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What triggers lupus flare ups?

Lupus flare-ups can be triggered by stress, infection, or missed doses of medication. To prevent a lupus flare, focus on your medication schedule, self-care, and sun protection. Hydroxychloroquine is the best medication to help prevent lupus flares.
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What are the top 10 signs of lupus?

Top 10 Most Common Lupus Symptoms Include:
  • Achy or swollen joints (arthralgia)
  • Unexplained fever (more than 100° F)
  • Swollen joints (arthritis)
  • Prolonged or extreme fatigue.
  • Skin rash, including a butterfly-shaped rash across the cheeks and nose.
  • Pain in the chest when breathing deeply (pleurisy)
  • Hair loss.
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What were your first signs of lupus?

Fatigue, fever, joint pain and weight changes are usually the first signs of lupus. Some adults may have a period of SLE symptoms known as flares, which may occur frequently, sometimes even years apart and resolve at other times—called remission. Other symptoms include: Sun sensitivity.
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What are the 11 symptoms of lupus?

Eleven common symptoms of lupus include:
  • Extreme fatigue.
  • Joint pain or swelling.
  • Swelling in the hands, feet, or around the eyes.
  • Fever.
  • Headache.
  • Sensitivity to light.
  • Chest pain when inhaling deeply caused by inflammation in the lining of the lungs.
  • Butterfly-shaped rash on the cheeks and nose.
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Do you gain weight with lupus?

Muscle pain — Muscle pain or tenderness is common in people with lupus; rarely, some people also notice muscle weakness. Weight changes — Lupus can sometimes cause weight loss or weight gain.
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What should you not do if you have lupus?

5 Things to Avoid if You Have Lupus
  1. (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  2. (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  3. (3) Garlic. ...
  4. (4) Alfalfa Sprouts. ...
  5. (5) Echinacea.
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Is lupus pain worse at night?

The first signs of AVN can be pain in your knees, hips, or shoulders. This can lead to stiff joints and muscle spasms. Your pain may increase as the condition advances, especially at night.
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What are the symptoms of lupus in a woman?

Common symptoms include fatigue, hair loss, sun sensitivity, painful and swollen joints, unexplained fever, skin rashes, and kidney problems. There is no one test for SLE. Usually your doctor will ask you about your family and personal medical history and your symptoms. Your doctor will also do some laboratory tests.
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Is having lupus serious?

The symptoms and outcomes of this autoimmune disease can vary greatly, from mild joint and skin problems to life-threatening conditions that affect the heart, kidneys and/or nervous system. If lupus is not diagnosed early and properly treated, organ damage may occur.
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Does lupus make you smell?

Surprisingly, an impairment in smell may be an important manifestation in systemic lupus erythematosus (SLE). Indeed, the sense of smell may be a clue to what is going wrong in the patient's nervous system, pointing to a new line of brain research to understand pathogenesis.
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What are the 4 types of lupus?

But there are four kinds of lupus:
  • Systemic lupus erythematosus (SLE), the most common form of lupus.
  • Cutaneous lupus, a form of lupus that is limited to the skin.
  • Drug-induced lupus, a lupus-like disease caused by certain prescription drugs.
  • Neonatal lupus, a rare condition that affects infants of women who have lupus.
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Does lupus make you feel hot?

Abnormally high levels of nitric oxide in those with lupus, or other autoimmune conditions, can make the skin's blood vessels dilate, bringing more body heat to the surface – causing warmth, skin reddening and sweat.
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Does lupus qualify for disability?

For Social Security's purposes, lupus qualifies as a disability when it meets these conditions: It involves two or more organs or body systems. It includes at least two major signs or symptoms, such as severe fatigue, fever, malaise, and involuntary weight loss.
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Does lupus affect your emotions?

Lupus and its treatments can impair mental & emotional health. 80-90% of people with lupus. Neuropsychiatric lupus describes feelings of depression, headaches, and lupus fog — trouble thinking or remembering due to lupus. 25% of lupus patients experience major depression and 37% have major anxiety, research shows.
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Is lupus caused by stress?

Some people say that a stressful event happened right before their first lupus flare. Although doctors haven't proven that stress is a direct cause of lupus, it's known to trigger flare-ups in people who already have the disease. Stressful events that can make symptoms worse include: A death in the family.
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What does lupus fatigue look like?

If you have fatigue related to lupus, it may feel like you can't possibly get enough rest. Even if you sleep more than you used to, it may feel like it's never enough. You may find that it's harder to do physical and mental work. The effort needed to do everyday tasks may be overwhelming.
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Can lupus affect your bowels?

Lupus can slow the digestive process, and this can cause a wide variety of GI issues. Digestive problems may be the direct result of an attack by the immune system or from medications to treat lupus. These digestive difficulties include nausea, vomiting, diarrhea, or constipation.
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What does the sun do to lupus patients?

Many people with lupus experience photosensitivity or unusual sensitivity to sunlight. This can trigger symptoms such as skin rashes, itching, and burning. Excess sun exposure can also cause flares in systemic lupus, triggering symptoms such as joint pain, weakness, and fatigue.
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