How do I explain lupus to my husband?

How would you describe your lupus?

Overview. Lupus is a disease that occurs when your body's immune system attacks your own tissues and organs (autoimmune disease). Inflammation caused by lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart and lungs.

How does a person with lupus act?

When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.

Is having lupus a big deal?

Lupus is a lifelong disease that can affect many parts of your life. But, many women with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.

How do you make someone with lupus feel better?

Living with Lupus as a couple...

What should you not say to someone with lupus?

So what should you avoid saying to lupus patients? The number one thing not to say is 'but you don't look sick'. This is something pretty much every lupus patient will have heard at least once.

What should you not do if you have lupus?

Does lupus qualify for disability?

For Social Security's purposes, lupus qualifies as a disability when it meets these conditions: It involves two or more organs or body systems. It includes at least two major signs or symptoms, such as severe fatigue, fever, malaise, and involuntary weight loss.

How do you feel when you have lupus?

They may be painless, or you may have soreness or dry mouth. Prolonged or extreme fatigue. You may feel tired or exhausted even when you get enough sleep. Fatigue can also be a warning sign of a lupus flare.

What triggers lupus flare ups?

Lupus flare-ups can be triggered by stress, infection, or missed doses of medication. To prevent a lupus flare, focus on your medication schedule, self-care, and sun protection. Hydroxychloroquine is the best medication to help prevent lupus flares.

What are the top 10 signs of lupus?

What are the 11 symptoms of lupus?

Is lupus a terminal illness?

With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease. However, for the majority of people living with the disease today, it will not be fatal.

How do I tell my family I have lupus?

What are the top 5 signs of lupus?

The list of potential symptoms of lupus is lengthy. Other symptoms include oral ulcers, enlarged lymph nodes, muscle pain, chest pain, osteoporosis, and depression. Rare symptoms include anemia, dizziness, and seizures.

What is the most serious form of lupus?

There are several different types of lupus: Systemic lupus erythematosus (SLE) is the most common and most serious type of lupus. SLE affects all parts of the body. Cutaneous lupus erythematosus, which affects only the skin.

Do you gain weight with lupus?

Muscle pain — Muscle pain or tenderness is common in people with lupus; rarely, some people also notice muscle weakness. Weight changes — Lupus can sometimes cause weight loss or weight gain.

Is lupus hard to live with?

Lupus is an unpredictable and misunderstood autoimmune disease. It is difficult to diagnose, hard to live with, and a challenge to treat.

Can you have lupus for years and not know it?

Lupus symptoms can also be unclear, can come and go, and can change. On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.

Can lupus put you in a wheelchair?

“Not every patient with lupus has that degree of severity but when you have your immune system attacking your kidneys or your heart or your lungs, that can be life threatening.” At one point Williams lost 50 percent of her muscle mass and was unable to even move, confined to a wheelchair.

Does lupus affect your teeth?

Tooth decay was present in 100% of people with active lupus disease and 85% of people with inactive lupus – possibly due to reduced salivary flow or dry mouth, a common development of lupus. People with lupus exhibit more tooth loss than healthy population.

Does lupus make you tired?

Lupus and Fatigue. Fatigue is a very common complaint among those living with lupus. HSS Rheumatologist, Dr. Jessica Berman indicates that research estimates 40% of lupus patients have persistent severe fatigue, meaning that the fatigue stays for a long period of time.

Does lupus get worse with age?

With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.

Does lupus progressively get worse?

Symptoms That May Indicate You Have Lupus

The presentation of lupus symptoms is usually subtle at first and gradually worsens over time. Doctors sometimes misdiagnose lupus as rheumatoid arthritis or fibromyalgia because it affects the same organs that those conditions do.

What is the life expectancy for lupus?

For people with lupus, some treatments can increase the risk of developing potentially fatal infections. However, the majority of people with lupus can expect a normal or near-normal life expectancy. Research has shown that many people with a lupus diagnosis have been living with the disease for up to 40 years.