Does Ehlers-Danlos make you look younger?

Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft.

Does EDS affect facial features?

People who have vascular Ehlers-Danlos syndrome often share distinctive facial features of a thin nose, thin upper lip, small earlobes and prominent eyes. They also have thin, translucent skin that bruises very easily. In fair-skinned people, the underlying blood vessels are very visible through the skin.

Do people with EDS wrinkle?

Geurts has a rare skin disorder called Ehlers-Danlos syndrome (EDS), which affects connective tissue and slows down collagen production, making skin fragile, wrinkled, and less elastic at a much earlier age.

Do people with EDS have more or less collagen?

The problems seen in patients with EDS can be due to either the poor strength of collagen. It may alternatively be due to the absence of sufficient amounts of structurally normal collagen. The primary complications seen in EDS involve the skin, muscles, skeleton, and blood vessels.

Can Ehlers-Danlos get worse with age?

Many of the problems associated with EDS are progressive, meaning that they get worse over time.

Ehlers-Danlos Test On EDS vs. Non-EDS Person

Does Ehlers-Danlos qualify for disability?

Applying for Social Security Disability with Ehlers-Danlos Syndrome. Like many rare genetic conditions, there is no Blue Book listing for Ehlers-Danlos. However, you may still qualify for benefits if you can match a listing associated with your particular symptoms or impairments.

Can you live a full life with EDS?

EDS cannot be 'cured' but many people learn over time how to control it and live full and active lives. The day-to-day management of most types of EDS is based around the right kind of exercise, physiotherapy and pacing. In addition you should seek referrals for any associated conditions you may have.

Does EDS affect your hair?

The defects of the collagen previously reported in EDS account for the increased extensibility of the skin (1, 2). It is possible that the altered skin structure results in increased pliability of the skin which may allow the hair follicles to expand.

Is exercise good for Ehlers-Danlos?

Many patients with EDS can benefit from low-impact exercises such as Pilates and Tai Chi, which help build core strength. Yoga can also be beneficial but poses must be done carefully as there is the risk of overextending joints in some positions. Swimming can be helpful as well for some EDS patients.

What vitamins help EDS?

We therefore hypothesize that the symptoms associated with Ehlers-Danlos syndrome may be successfully alleviated using a specific (and potentially synergistic) combination of nutritional supplements, comprising calcium, carnitine, coenzyme Q(10), glucosamine, magnesium, methyl sulphonyl methane, pycnogenol, silica, ...

How does Ehlers-Danlos affect the skin?

The different structure of the skin in the Ehlers-Danlos syndromes makes it more fragile than normal skin. Stretchiness, abnormal scarring, stretch marks at a young age, easy bruising and slow wound healing are all signs of EDS, but the presence and severity of these issues will depend on the type.

Can you get Botox if you have Ehlers-Danlos?

Botulinum toxin may break such compensation, leading to head and neck instability, worsening of pain and even serious injuries. Extra caution should be exercised for Botulinum toxin injection in patients with hypermobility EDS. Muscles involving head and neck stabilization should be avoided.

What do EDS eyes look like?

Blue sclera may occur in patients with EDS, this is a blue appearance of the whites of the eyes caused by thinness of the sclera.

Does Ehlers-Danlos syndrome affect teeth?

In addition people with EDS, like any other individual, are at risk of some periodontal disease that can ultimately lead to bad breath, gum bleeding, tooth mobility or tooth loss. Good oral hygiene will reduce the risk of periodontal disease.

Does EDS affect the eyes?

Ehlers Danlos Syndrome patients are prone to myopia and elongated eyes due to the stretching of the collagenous sclera.

What mimics Ehlers-Danlos syndrome?

Tnxb-/- mice showed progressive skin hyperextensibility, similar to individuals with Ehlers-Danlos syndrome. Biomechanical testing confirmed increased deformability and reduced tensile strength of their skin.

Does collagen supplements help with EDS?

Bottom Line: No established research or clinical experience has proven that collagen supplementation is helpful for persons with EDS! Theoretically, a diet adequate in glycine, proline, lysine, and vitamin C (or supplementation) would support collagen biosynthesis.

Is swimming good for Ehlers Danlos?

By Jeff Kolb. 9-year-old Shea has discovered that swimming reduces his EDS pain. Aquatic activity is one of the best exercises for those with Ehlers-Danlos Syndrome.

Should people with EDS do yoga?

Yoga is often contraindicated for those with EDS as, without sound connective tissue, the postures and practices can destroy the joints.

What is the life expectancy of someone with hypermobility?

Patients with the classical and hypermobility forms of Ehlers-Danlos syndrome have a normal life expectancy. About 80% of patients with vascular Ehlers-Danlos syndrome will experience a major health event by age 40 and the life expectancy is shortened, with an average age of death of 48 years.

Do people with EDS have high cholesterol?

EDS can cause serious problems within the circulatory system. People with this condition often suffer from low blood pressure and high cholesterol. They may experience aneurysms or tiny veins that cause restricted blood flow, resulting in ruptures in the veins and arteries.

Can you have EDS without stretchy skin?

Skin and Connective Tissue: People with hEDS do NOT have to have profoundly stretchy skin! Most notably, in hEDS, the degree of softness, stretchiness, fragility, bruisability, and poor wound healing of skin differs from “normal” subjects but is mild in comparison to other types of EDS.

Is it harder to get pregnant with EDS?

Conclusion. Women with EDS have a much higher rate of reproductive problems than would be expected to occur in a general population. Women with EDS suffer with a high incidence of infertility, spontaneous abortions, preterm labor, abnormal uterine bleeding, dysmenorrhea, and severe dyspareunia.

Does Ehlers-Danlos shorten life expectancy?

The long-term outlook (prognosis) for people with vascular Ehlers-Danlos syndrome is generally poor. It is often associated with a shortened lifespan. Among affected people diagnosed as the result of a complication, 25% have experienced a significant medical complication by age 20 and more than 80% by age 40.

Does Ehlers-Danlos cause dementia?

Participants with 1 EDS had an 87% increased risk of developing dementia, while those with 2 or more EDS were nearly twice as likely to develop dementia. Cox proportional hazards models showed a 14% increase in dementia risk with each occurrence of an EDS.