Can I live a normal life with lupus?

Many people with lupus can minimize flares, lessen the burden of the disease and live a quality life by following their treatment plan and taking care of themselves. In fact, nearly 90 percent of people with lupus live to a normal life expectancy.
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Is having lupus serious?

Lupus can cause serious kidney damage, and kidney failure is one of the leading causes of death among people with lupus. Brain and central nervous system. If your brain is affected by lupus, you may experience headaches, dizziness, behavior changes, vision problems, and even strokes or seizures.
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How long can you live after lupus diagnosis?

However, the majority of people with lupus can expect a normal or near-normal life expectancy. Research has shown that many people with a lupus diagnosis have been living with the disease for up to 40 years. As research progresses, scientists hope to identify people who have a risk of lupus through genetic studies.
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Can you live with lupus without treatment?

If left untreated, it can put you at risk of developing life-threatening problems such as a heart attack or stroke. In many cases, lupus nephritis does not cause any noticeable symptoms. However, this does not mean the condition is not dangerous, as the kidneys could still be being damaged.
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Does lupus get worse with age?

With age, symptom activity with lupus often declines, but symptoms you already have may grow more severe. The accumulation of damage over years may result in the need for joint replacements or other treatments.
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Living with Lupus: a patient perspective



What should you not do if you have lupus?

5 Things to Avoid if You Have Lupus
  1. (1) Sunlight. People with lupus should avoid the sun, since sunlight can cause rashes and flares. ...
  2. (2) Bactrim and Septra (sulfamethoxazole and trimethoprim) Bactrim and Septra are antibiotics that contain sulfamethoxazole and trimethoprim. ...
  3. (3) Garlic. ...
  4. (4) Alfalfa Sprouts. ...
  5. (5) Echinacea.
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Is lupus a death sentence?

Lupus is not a death sentence. Most patients live normal, healthy, and full lives. They may need to modify things such as sun exposure, stress levels, etc. to maintain good health.  It is important that you see a rheumatologist and follow his/her recommendations.
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What is it like living with lupus?

Having lupus can make everyday life challenging. When your lupus is active, symptoms like joint stiffness, pain, fatigue, confusion, or depression can make simple tasks difficult — and sometimes impossible. Since these symptoms aren't visible, the people around you may have trouble understanding how you feel.
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Can you recover from lupus?

Lupus is a chronic disease with no cure.

This means that you can manage it with treatment, but it will not go away. Treatment can help improve your symptoms, prevent flares, and prevent other health problems often caused by lupus.
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Can lupus be stopped?

Lupus is a lifelong disease that can affect many parts of your life. But, many women with lupus live long, healthy lives. You can take steps to control your symptoms, prevent lupus flares, and cope with the challenges of lupus.
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Can lupus be cured if caught early?

There is no cure, but early treatment can help to keep symptoms under control. The rest of this information is about SLE, which we will call lupus.
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Can you work with lupus?

Many people with lupus are able to continue to work, although they may need to make changes in their work environment. Flexible work hours, job-sharing, and telecommuting may help you to keep working. It may be helpful to begin to make such arrangements soon after you have been diagnosed with lupus.
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Can you live a normal life with autoimmune diseases?

Your autoimmune disease symptoms may change with time. They may go into remission, where you have minimal or no symptoms, or they could flare up, making the disease worse. Although they can't be cured, some of the symptoms can be treated. Many people with autoimmune diseases can live a normal life.
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Does lupus make you sleep a lot?

Lupus and Fatigue. Fatigue is a very common complaint among those living with lupus. HSS Rheumatologist, Dr. Jessica Berman indicates that research estimates 40% of lupus patients have persistent severe fatigue, meaning that the fatigue stays for a long period of time.
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What are the chances of surviving lupus?

The prognosis of lupus is better today than ever before. With close follow-up and treatment, 80-90% of people with lupus can expect to live a normal life span. It is true that medical science has not yet developed a method for curing lupus, and some people do die from the disease.
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How do you feel when you have lupus?

They may be painless, or you may have soreness or dry mouth. Prolonged or extreme fatigue. You may feel tired or exhausted even when you get enough sleep. Fatigue can also be a warning sign of a lupus flare.
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How do you know if lupus is active?

Common symptoms that indicate a flare are:
  1. Ongoing fever not due to an infection.
  2. Painful, swollen joints.
  3. An increase in fatigue.
  4. Rashes.
  5. Sores or ulcers in the mouth or nose.
  6. General swelling in the legs.
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Does lupus progressively get worse?

Symptoms That May Indicate You Have Lupus

The presentation of lupus symptoms is usually subtle at first and gradually worsens over time. Doctors sometimes misdiagnose lupus as rheumatoid arthritis or fibromyalgia because it affects the same organs that those conditions do.
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How much sleep do you need with lupus?

Get Enough Rest to Prevent Fatigue

Most people do best with at least seven to eight hours of sleep each night. If you have lupus you may need even more sleep. “It's important to develop good sleeping habits,” says Jolly.
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What I wish people knew about lupus?

You can still live a full life while having lupus.

The main thing Harris wishes people knew about having lupus? That you can still experience life to the fullest. "A lot of people don't think that you can live with it. And they think they're gonna die but you can live a full life," she says.
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Can lupus go into permanent remission?

Conclusion: Our study indicated that 14.5% of lupus patients achieved a complete remission for 3 years. However, flares may continue to occur beyond 10 years of remission.
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Do you gain weight with lupus?

Muscle pain — Muscle pain or tenderness is common in people with lupus; rarely, some people also notice muscle weakness. Weight changes — Lupus can sometimes cause weight loss or weight gain.
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What are the top 5 signs of lupus?

The list of potential symptoms of lupus is lengthy. Other symptoms include oral ulcers, enlarged lymph nodes, muscle pain, chest pain, osteoporosis, and depression. Rare symptoms include anemia, dizziness, and seizures.
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How fast does lupus progress?

On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.
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What triggers lupus flare ups?

Lupus flare-ups can be triggered by stress, infection, or missed doses of medication. To prevent a lupus flare, focus on your medication schedule, self-care, and sun protection. Hydroxychloroquine is the best medication to help prevent lupus flares.
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