Can Ehlers Danlos affect your voice?

Some people with Ehlers-Danlos syndrome (EDS) may experience dysphonia, or a hoarse voice, as a consequence of their disease, but symptoms seem to improve with voice therapy, according to a report of four cases in the U.S.

What are the throat and voice problems in Ehlers-Danlos syndromes and hypermobility spectrum disorders?

In summary, people with EDS have problems with their throat and this can take a variety of forms including fatigue of the voice, fatigue in swallowing, coughing, or choking and dysphonia or voice loss. Expanding awareness of these concerns is essential.

What are the oral symptoms of EDS?

In addition people with EDS, like any other individual, are at risk of some periodontal disease that can ultimately lead to bad breath, gum bleeding, tooth mobility or tooth loss.

What are the facial features of Ehlers-Danlos?

People who have vascular Ehlers-Danlos syndrome often share distinctive facial features of a thin nose, thin upper lip, small earlobes and prominent eyes. They also have thin, translucent skin that bruises very easily. In fair-skinned people, the underlying blood vessels are very visible through the skin.

Is Ehlers-Danlos inherited from mother or father?

For a child to be affected both parents must pass on an EDS gene. With each pregnancy there is a 25% chance that each child will have the disorder.

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What medications should be avoided with Ehlers-Danlos syndrome?

Official answer. With Ehlers-Danlos syndrome (EDS), experts recommend avoiding drugs that increase your risk of bleeding—such as anticoagulants and antiplatelet agents—because those affected with EDS are at higher risk for bruising and injury.

Should people with Ehlers-Danlos have children?

Overall, pregnancy is well tolerated in hEDS. Possible complications are mainly attributable to joint hypermobility, skin and tissue fragility and abnormal collagen in blood vessels. It is generally a benign condition and the majority of women tolerate pregnancy well with good outcomes.

Do people with EDS have less wrinkles?

Less wrinkles

Due to the collagen in the skin being extra stretchy, many EDS patients experience a lack of wrinkles as they age. This collagen may help EDS patients look younger and can also cause skin to feel extremely soft. Doctor's even describe the skin as “velvet-soft”.

What is EDS jaw?

Mouth and jaw symptoms have been observed in all types of EDS patients. Collagen defects cause problems for mouth health including blood vessels, bone, teeth, gum tissue, nerve tissue, as well as the tendons and ligaments that retain facial/jaw structures in position.

Is there a mild form of Ehlers-Danlos?

EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling. The different types of EDS are caused by faults in certain genes that make connective tissue weaker.

Can EDS affect your throat?

There is increasing awareness that many of the connective tissue disorders (such as EDS) have implications for swallowing, causing pain and difficulty with eating.

Do people with EDS pop a lot?

People with hypermobility in their joints can experience a lot more popping and cracking noises than other people. This is because their joints tend to have more freedom of movement due to having stretchy ligaments so its easier for cavitation to occur.

What is EDS often misdiagnosed as?

Patients with EDS, especially those with EDS hypermobility type, are often misdiagnosed with conditions such as fibromyalgia, chronic fatigue syndrome, or depression, given the overlap of symptoms and the psychosocial impact they have on the patient.

What neurological disorders affect voice?

Neurologic voice disorders occur as part of an underlying neurologic condition such as Parkinson's disease, multiple sclerosis, myasthenia gravis, or ALS. They can also happen as the result of a stroke. These disorders can affect the strength of the muscles of the voice box, and impact the control of the voice.

What is the rarest form of EDS?

Periodontal EDS, also known as EDS type 8, is the rarest form of the disease. It is characterized by periodontitis (serious gum inflammation), which eventually leads to the loss of teeth. Periodontitis in patients with this type has an early onset, appearing in puberty.

What are 3 of the cardinal features of Ehlers-Danlos?

7.2 Ehlers-Danlos Syndrome. EDS is a genetically and clinically heterogeneous heritable disorder characterized by abnormal collagen synthesis, and whose cardinal features include joint hypermobility, skin hyperextensibility, and soft connective tissue fragility [47].

How does EDS affect eyes?

EDS may predispose individuals to a greater risk of open globe with ocular trauma. In kyphoscoliotic EDS, scleral rupture is more common, whereas in brittle cornea syndrome, corneal rupture is more common. Ocular conditions related to EDS have a better prognosis when diagnosis is made earlier.

Can EDS affect your neck?

Those with EDS can also have unusual curves in the spine, which affects susceptibility to these problems. Generally, an overly moveable spine in EDS patients can lead to worsening symptoms related to damage to the spinal cord, as well as neck and chest pain.

Can you have Ehlers-Danlos and not know it?

Only 5% of EDS patients are correctly diagnosed. More than 650,000 Americans/year remain undiagnosed and have never heard of Ehlers-Danlos Syndrome.

How does EDS affect hair?

We have observed that the hair follicles of the skin in patients with EDS are macroscopically more prominent than those of healthy subjects (Fig.

What position do people with EDS sleep in?

Sleeping on your side. Favoured by 50% of those with EDS and hypermobility in our little experiment, side sleeping seems to be the most popular sleeping position amongst those with EDS and hypermobility.

Does EDS affect teeth?

While many people with EDS not have any notable oral problems specifically due to EDS, this connective tissue disorder can affect the teeth and gums as well as the temporomandibular joint. In addition, the systemic complications of EDS could sometimes compromise the delivery of routine dental care.

Does Ehlers-Danlos syndrome qualify for SSI?

You are only eligible for Social Security disability benefits, if your Ehlers-Danlos syndrome results in a severe medical condition that will last one year. Likewise, you also are disabled if your condition will result in death.

Do people with EDS get sick easily?

People with Ehlers-Danlos Syndrome (EDSers) may have higher risk for infections. Fragile skin and poor healing may lead to skin infections. EDSers often have a lowered immune system, possibly due to chronic stress on multiple body systems or an IgG-3 deficiency.

What famous people have EDS?