Can craniosynostosis cause retardation?

Chi-square analysis showed no significant differences between rates of retardation or learning disorders based on surgical status. Conclusions: Most children with nonsyndromic craniosynostosis obtain developmental quotients within the normal range in infancy.
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Can craniosynostosis cause learning disabilities?

Matthew Speltz's team published results indicating that school-age children with the most common form of craniosynostosis are more likely to suffer developmental delays and learning problems than children who don't have the disorder.
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Does craniosynostosis affect brain development?

Craniosynostosis is a condition in which the sutures in a child's skull close too early, causing problems with head growth. Premature closure of the sutures may also cause the pressure inside of the head to increase, which can affect brain development.
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What are the long term effects of craniosynostosis?

If left untreated, craniosynostosis can lead to serious complications, including: Head deformity, possibly severe and permanent. Increased pressure on the brain. Seizures.
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What can craniosynostosis lead to?

Craniosynostosis occurs when a baby's skull bones fuse too early. As a result babies may have a misshapen skull, which may impair brain growth. Without treatment, children may have developmental delays. Helmet therapy or craniosynostosis surgery can release or reshape a baby's fused bones.
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Craniosynostosis and its treatment | Boston Children’s Hospital



Can craniosynostosis cause speech delay?

They found that over half of the children with non-syndromic craniosynostosis had abnormalities speech and language development and that around one third needed to see a speech and language therapist. The cause of these speech and language delays isn't known.
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Is craniosynostosis a birth defect?

Three to five babies in every 1,000 live births have closure of the sagittal suture, the most common form of Craniosynostosis. This condition is more common in males.
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Can kids with craniosynostosis play sports?

OBJECTIVE Craniosynostosis (CS) affects about 1 in 2500 infants and is predominantly treated by surgical intervention in infancy. Later in childhood, many of these children wish to participate in sports. However, the safety of participation is largely anecdotal and based on surgeon experience.
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What is the life expectancy of someone with craniosynostosis?

People with Crouzon syndrome have a normal life expectancy. Most children with this condition are unaffected intellectually. However, it can alter the shape of the face and cause vision and hearing problems.
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Can craniosynostosis cause behavior problems?

In unilateral coronal craniosynostosis, problems with intelligence, speech, learning, or behavior have been reported in 52% and 61% of children affected on the left and right sides, respectively6).
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Do babies with craniosynostosis cry a lot?

Sleepiness or baby is less alert than usual. Very noticeable scalp veins. Increased irritability or fussiness. High-pitched cry.
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How serious is craniosynostosis in babies?

Craniosynostosis can affect a child's brain and development. The degree of the problems depends on the severity of the craniosynostosis, the number of sutures that are fused, and the presence of brain or other organ system problems that could affect the child.
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What syndromes are associated with craniosynostosis?

Syndromes most frequently associated with craniosynostosis include Apert, Crouzon, Pfeiffer, Carpenter, and Saethre-Chotzen [1]. Syndromic craniosynostoses are often sporadic and are the result of de novo autosomal dominant mutations involving fibroblast growth factor receptors (FGFRs) and TWIST genes.
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Do kids with craniosynostosis live normal lives?

Is it common? Craniosynostosis occurs in one in 2000 births and is often without a known cause. It can sometimes be linked to a genetic syndrome. Most children with craniosynostosis are otherwise healthy and have normal intelligence.
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Is craniosynostosis genetic?

In extremely rare cases, primary isolated craniosynostosis is genetic and in such cases is usually inherited as an autosomal dominant trait. Most cases of primary craniosynostosis that occur as part of a syndrome are also inherited as autosomal dominant traits.
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Is craniosynostosis surgery safe?

The surgery is very safe and produces excellent results. There are several surgical options for treating craniosynostosis, depending on which type it is. It's usually best to perform surgery at just a few weeks to a few months of age, since the skull bones are the softest and most malleable then.
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What is the success rate of craniosynostosis surgery?

The data support this: in 2020 alone, more than 50 craniosynostosis procedures have been performed, with a success rate of 99%, relatively fast recovery times, and hardly any complications.
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Is craniosynostosis a major surgery?

All centers still offer traditional surgery, particularly for babies who are diagnosed at later ages or babies who have particular types of craniosynostosis with more extensive deformities. The surgery is immensely safer than it was in previous decades, but it is a longer overall procedure — it can take six hours.
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How long does it take to recovery from craniosynostosis surgery?

The bones will be healed 6 weeks after surgery but trauma to the head should be avoided. Parents sometimes notice small areas of swelling 8-12 months after surgery as the plates begin to dissolve. Patients undergoing surgery for craniosynostosis are typically seen annually by their surgeons until they are done growing.
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Is craniosynostosis surgery necessary?

Though not always necessary, there is surgical treatment to correct craniosynostosis. Craniosynostosis surgery allows the bones' shapes to improve. It is also occasionally required to reduce pressure buildup in the skull. In some cases, the surgery may facilitate neurological development.
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Can craniosynostosis cause microcephaly?

A condition called craniosynostosis can cause microcephaly. In cases of craniosynostosis, the joints between the bones of an infant skull fuse together prematurely, preventing the brain from growing fully. However, this condition is typically reversible with surgery that helps reshape the skull.
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Does craniosynostosis hurt?

In general, craniosynostosis is not a painful condition. However, if there is increased pressure on the brain, it can cause: Abnormalities affecting the face and hands. Headaches.
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When does baby head shape become permanent?

It can take 9-18 months before a baby's skull is fully formed. During this time some babies develop positional plagiocephaly. This means that there is a flat area on the back or side of the head. Positional plagiocephaly does not affect brain growth or development; it is purely a shape issue.
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Can craniosynostosis cause hearing loss?

Children with syndromic craniosynostosis are at high risk of developing hearing loss. An earlier retrospective study1 found that the prevalence of hearing loss varied from 37% among children with Saethre-Chotzen syndrome to 72% among children with Apert syndrome.
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What happens if craniosynostosis is left untreated?

Sometimes, if the condition is not treated, the build-up of pressure in the baby's skull can lead to problems, such as blindness, seizures, or brain damage.
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