How do I tell my doctor I think I have lupus?

If your doctor believes your signs and symptoms point to the possibility of lupus, he/she may recommend a referral to a specialist doctor who has training in the group of autoimmune diseases that includes lupus. This specialist is called a rheumatologist (ROOM-ah-TOHL-ah-JYST).
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When should you see a doctor if you think you have lupus?

New onset of a fever or if your fever is much higher than usual. Excess bruising or bleeding anywhere on your body. Confusion or mood changes. A combination of symptoms such as severe headache with neck stiffness and fever.
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What should I do if I suspect I have lupus?

If you have symptoms of lupus, tell your doctor right away. No single test can tell if a person has lupus. But your doctor can find out if you have lupus in other ways, including: Medical history.
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Should I talk to my doctor about lupus?

Even if you aren't sure it's related to your lupus, write it down and talk about it with your doctor. Lupus can affect your whole body in ways you may not even recognize. Remember, feedback is important.
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Can a primary care doctor diagnose lupus?

And, because lupus can have many different presentations, diagnosis can be difficulty and lengthy. Primary care providers are usually the first providers to see these patients, and they need more education on ordering labs and when to refer a patient to a rheumatologist.
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Lupus - Signs



What are the 11 criteria for lupus diagnosis?

The eleven criteria for lupus include:
  • Malar rash: Malar rash also known as butterfly rash is commonly presented on the face. ...
  • Discoid rash: ...
  • Photosensitivity: ...
  • Oral ulcers: ...
  • Nonerosive arthritis: ...
  • Serositis: ...
  • Renal disorder: ...
  • Neurologic disorder:
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What can mimic lupus symptoms?

Here are the conditions that are most likely to mimic the symptoms of lupus and how to make sure you get the right diagnosis.
  • Rheumatoid arthritis. ...
  • Rosacea and other skin rashes. ...
  • Dermatomyositis. ...
  • Undifferentiated Connective Tissue Disease. ...
  • Hashimoto's disease. ...
  • Sjögren's syndrome. ...
  • Fibromyalgia.
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How do I ask my doctor for lupus?

If your doctor believes your signs and symptoms point to the possibility of lupus, he/she may recommend a referral to a specialist doctor who has training in the group of autoimmune diseases that includes lupus. This specialist is called a rheumatologist (ROOM-ah-TOHL-ah-JYST).
Takedown request   |   View complete answer on lupus.org


What does a lupus flare feel like?

During a lupus flare, you could expect to have rashes, joint pain, and possibly a new symptom, too. Some common symptoms of lupus flares include: Painful and swollen joints. Rashes.
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Why is it so hard to get a lupus diagnosis?

Lupus is a disease that is known for being difficult to diagnose because the symptoms are different from person to person, they mimic the symptoms of many other diseases, and they can come and go. It can sometimes take several years to receive an official diagnosis.
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How long can you have lupus without knowing?

Lupus symptoms can also be unclear, can come and go, and can change. On average, it takes nearly six years for people with lupus to be diagnosed, from the time they first notice their lupus symptoms.
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What does Mild lupus look like?

A tell-tale sign of lupus is a butterfly-shaped rash across the cheeks and bridge of the nose. Other common skin problems include sensitivity to the sun with flaky, red spots or a scaly, purple rash on various parts of the body, including the face, neck, and arms. Some people also develop mouth sores.
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Does lupus cause weight gain?

Muscle pain — Muscle pain or tenderness is common in people with lupus; rarely, some people also notice muscle weakness. Weight changes — Lupus can sometimes cause weight loss or weight gain.
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What happens if lupus goes untreated?

If left untreated, it can put you at risk of developing life-threatening problems such as a heart attack or stroke. In many cases, lupus nephritis does not cause any noticeable symptoms. However, this does not mean the condition is not dangerous, as the kidneys could still be being damaged.
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What can trigger lupus?

Lupus can be triggered by certain types of blood pressure medications, anti-seizure medications and antibiotics. People who have drug-induced lupus usually get better when they stop taking the medication. Rarely, symptoms may persist even after the drug is stopped.
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Can you still have lupus with normal blood work?

Dr. Michael Lockshin: The diagnosis of lupus is never made by blood test alone, since some people have positive blood tests but no disease. To make a diagnosis of lupus, you need to have both symptoms and, generally, positive blood tests.
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What are the top 10 signs of lupus?

Top 10 Most Common Lupus Symptoms Include:
  • Achy or swollen joints (arthralgia)
  • Unexplained fever (more than 100° F)
  • Swollen joints (arthritis)
  • Prolonged or extreme fatigue.
  • Skin rash, including a butterfly-shaped rash across the cheeks and nose.
  • Pain in the chest when breathing deeply (pleurisy)
  • Hair loss.
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Is lupus pain worse at night?

The first signs of AVN can be pain in your knees, hips, or shoulders. This can lead to stiff joints and muscle spasms. Your pain may increase as the condition advances, especially at night.
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Does lupus qualify for disability?

For Social Security's purposes, lupus qualifies as a disability when it meets these conditions: It involves two or more organs or body systems. It includes at least two major signs or symptoms, such as severe fatigue, fever, malaise, and involuntary weight loss.
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Does lupus come on suddenly?

Lupus affects people differently. Signs and symptoms of lupus may come on suddenly in some people, and gradually over time in others. Signs and symptoms of lupus can include: Butterfly-shaped rash that covers the cheeks and bridge of the nose.
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What will a rheumatologist do for lupus?

Once lupus is diagnosed, your rheumatologist will work with you to come up with a treatment plan (including lupus medications) that makes sense for you. Rheumatologists help patients prevent and treat lupus flares and reduce organ damage and other problems.
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What is lupus pain like?

Lupus can also cause inflammation in the joints, which doctors call “inflammatory arthritis.” It can make your joints hurt and feel stiff, tender, warm, and swollen. Lupus arthritis most often affects joints that are farther from the middle of your body, like your fingers, wrists, elbows, knees, ankles, and toes.
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What is borderline lupus mean?

Borderline lupus, which can also be known as unspecified connective tissue disease, or probable lupus, or latent lupus, would define a patient who may have a positive ANA without a DNA or Smith antibody (blood tests used to diagnose lupus), who has arthralgias rather than arthritis, a brain fog or memory loss, and no ...
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Can Urgent Care diagnose lupus?

With FastMed, you won't have to wait for a healthcare appointment beforefinding out if you have lupus. Our walk-in clinics are open 365 days a year with extended hours. In order to provide you with an accurate diagnosis, your medical professional may also suggest: A urine test.
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What are the 4 types of lupus?

But there are four kinds of lupus:
  • Systemic lupus erythematosus (SLE), the most common form of lupus.
  • Cutaneous lupus, a form of lupus that is limited to the skin.
  • Drug-induced lupus, a lupus-like disease caused by certain prescription drugs.
  • Neonatal lupus, a rare condition that affects infants of women who have lupus.
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