How did you know you had Sjogren's?

Blood and urine tests, to look for the presence of antibodies common in Sjögren's syndrome. The results of an ANA (antinuclear antibody) test will determine if you have an autoimmune disorder. Schirmer's test, to see if your tear glands are producing enough tears to keep your eyes moist.
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What were your first symptoms of Sjögren's?

The two main symptoms of Sjogren's syndrome are:
  • Dry eyes. Your eyes might burn, itch or feel gritty — as if there's sand in them.
  • Dry mouth. Your mouth might feel like it's full of cotton, making it difficult to swallow or speak.
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Can you have Sjogren's and not know it?

Facts about Sjögren's syndrome

Sjögren's goes undiagnosed in up to 50% of cases, in part because the disease resembles many other conditions and may co-occur with other autoimmune diseases such as lupus or fibromyalgia.
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How do you rule out Sjogren's?

Your doctors may recommend the following tests to determine if you have Sjögren's syndrome:
  1. Blood and Urine Tests.
  2. Schirmer's Test.
  3. Ocular Surface Staining.
  4. Salivary Gland Function Scans (Parotid Scintigraphy)
  5. Labial Gland (Lip) Biopsy.
  6. Sialometry.
  7. Ultrasonography of the Major Salivary Glands.
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What does a sjogrens flare feel like?

Joint pain is one of the most common symptoms of Sjögren's syndrome. Multiple joints are painful, usually episodically with periods of joint pain, known as “flares”, followed by periods of little or no joint pain. Tenderness and swelling of the joints, when present, are indicative of inflammatory arthritis.
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Sjogren's Syndrome: Beyond Dry Eyes and Mouth by Frederick Vivino, MD



What does a Sjogren's tongue look like?

a smooth, red tongue. a change in how food tastes. dry, sore and cracked skin at the corners of your lips. problems such as tooth decay, gum disease, mouth ulcers, and oral thrush (a fungal infection that can cause a raw, red or white tongue)
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What can mimic Sjogren's?

Other autoimmune disorders may also mimic Sjogren's.
...
Conditions that mimic Sjogren's
  • tricyclic antidepressants such as amitriptyline (Elavil) and nortriptyline (Pamelor)
  • antihistamines such as diphenhydramine (Benadryl) and cetirizine (Zyrtec)
  • oral contraceptives.
  • blood pressure medications.
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Does Sjogren's show up in blood test?

In Sjögren's syndrome, the immune system produces antibodies that attack healthy areas of the body. These can be found during a blood test. But not everyone with Sjögren's syndrome has these antibodies, so you may have the condition even if a blood test does not find them.
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What is the most accurate test for Sjogren's syndrome?

Antinuclear Antibody (ANA): The ANA test is positive in the majority of Sjögren's syndrome patients. However, a positive ANA test is also common in healthy individuals. The ANA test is most commonly performed using a technique that involves immunofluorescent staining of human cells grown in tissue culture (Figure 3).
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Can Sjogren's develop suddenly?

The condition may progress slowly, so the typical symptoms of dry eyes and mouth may take years to show. However, rapid onset can also occur. Symptoms can be mild, moderate or severe, and the progression is often unpredictable.
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What does sjogrens joint pain feel like?

Your joints may be painful and swollen due to inflammation, or you might feel that various parts of your body, such as your muscles, are achy and tender. Some people with this condition have headaches and migraines.
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Can Sjogren's stay mild?

There is no cure for Sjögren's syndrome. As with other autoimmune diseases, the severity of Sjögren's varies from person to person. Many patients have a mild disease that only affects the eyes and mouth. Others have symptoms that wax and wane in severity or may even go into remission.
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What labs are abnormal with Sjogren's syndrome?

Many patients with Sjögren's have one of two specific abnormal auto-antibodies that can be detected in their blood: anti-SSA and anti-SSB, also known as “anti-Ro” and “anti-La.” Most hospitals and doctors' offices can send patients' blood for these tests.
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What does Sjögren's fatigue feel like?

Sjogren's Syndrome patients often complain of mental fatigue or “brain fog.” Brain fog impairs focus, causes fuzzy concentration, and contributes to difficulty in problem-solving.
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Does Sjogren's make it hard to swallow?

Many people with Sjögren's syndrome experience oral symptoms beyond mouth dryness — with trouble in speaking, oral ulcers, and difficulty swallowing identified as the ones that most impact their quality of life and finances — a study based on a U.S. patient survey has found.
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What does a Sjogren's rash look like?

Sjogren's syndrome patients often develop a purple-to-red rash that does not lighten when pressure is applied. They may also show purpura (rashes with blood spots) that's indicative of vasculitis (inflammation of blood vessels). If you observe any of these rashes on your skin, consult a dermatologist.
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Does Sjogren's affect the tongue?

The symptom most associated with SS is oral (mouth) dryness, known as xerostomia. Other oral symptoms may include: burning of the tongue. cracking of the tongue.
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Can you have Sjogren's without dry mouth?

Symptoms. Sjögren's syndrome may affect only the eyes or only the mouth or it may be more general. One out of three people who have Sjögren's syndrome also have arthritis. A person may have signs of a rheumatic disease, but not have the dry eyes or mouth associated with some forms of Sjögren's.
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What triggers a Sjogren's flare?

Autoimmune diseases such as Sjogren's syndrome are highly likely to be triggered by environmental factors such as pollution, infections, certain medications, diet, and allergy-causing agents. Make a note of potential environmental triggers, and try to steer clear of them as much as possible.
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Can an eye doctor diagnose Sjogren's syndrome?

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease.
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Can you still have sjogrens with a negative lip biopsy?

A negative finding does not rule out Sjogren's. False negative results may occur due to problems with the biopsy sample, the reading of the sample, or an inadequate number of representative glands. Early in the disease, inflammation may not have developed into clusters of cells that qualify as foci.
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Can you have Sjögren's without RA?

Sjögren's syndrome occurs in two basic forms: primary Sjögren's syndrome -- the disease by itself and not associated with any other illness; and secondary Sjögren's syndrome -- disease that develops in the presence of another autoimmune disease such as rheumatoid arthritis, lupus, or vasculitis.
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Does sjogrens make you itch?

Your skin is dry and itchy

Unless you use heavy moisturizers and take extra steps to lock in hydration, Sjögren's can cause your skin to feel rough and itchy. You might also notice an eczema-like rash, which is likely more related to underlying autoimmune problems as opposed to the body's moisture production, says Dr.
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Does your mouth burn with Sjogren's?

Burning mouth syndrome (BMS) is defined as burning sensation in the mouth without any observable abnormalities. Many people with BMS also describe oral dryness; some of these people with oral dryness have findings consistent with Sjögren's syndrome (a condition that classically causes dryness of the eyes and mouth).
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What vitamins help with Sjogren's?

Herbs and Supplements for Sjogren's syndrome
  • Cysteine.
  • Evening Primrose.
  • Gamma-Linolenic Acid (GLA)
  • Omega-6 Fatty Acids.
  • Sulfur.
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